2002 Vaules Family Christmas Letter

by Robb Vaules on December 25, 2002

Andy posing in his carseat.

Andy posing in his car seat.

Since I can’t put it off for any longer, I present to you, our annual Vaules Christmas letter, Minnesota Family Chapter. Get a beverage and make yourself comfortable.

I started last year’s letter with “If it is true that what does not kill us makes us stronger, then I am Superman, and I would like you to meet my Wife, Wonder Woman.” While truthful as well as a touch sarcastic in tone, who knew 2001 was a warm up act for 2002? I really hope 2003 is calm. Oh, that’s right we have a kid now – silly me. Considering our history, I dared not think of what this year’s Christmas letter would say, until now. Yes, I know I’m a tad tardy with the letter.

This year’s Christmas letter really started on Saturday June 22, 2002. This was when one of Renae’s cousins asked me about this year’s Christmas letter at a family wedding. Great, it’s June and I am getting pressure about the Christmas letter. I thought, correctly at the time, that I really had nothing to write about until Andy arrived in October. Little did anyone know he would show up one week later. I might have to avoid family functions for a while; bad Karma, you know.

So here I go, yet again leaning over and getting a firm grip on reality’s bootstraps to write the annual Christmas letter. Again, I write to you about the joyful lives of a couple in love, their new baby boy Andy, and their loyal dog Walt. I quote from last year’s letter, “To say this was a hard year would be putting it mildly. This has been an incredibly long year, with many events that have dragged at the hands of time. While I am able to grasp that many more people have had it much worse than we did this year, all I can say is that I can’t wait to see Dick Clark’s face. Goodbye 2001 and good riddance.” I’ll add 2002 shouldn’t wait for us to say goodbye, either. Onto the fun…

One thing about mass-produced Christmas letters is they tend to be impersonal, or brag about one thing or another. I actually like these letters, and find them interesting in an anthropological sort of way. They break down peoples’ worlds in all sorts of ways, and they really show how boring a family can be in one or two pages. Well folks, if you haven’t heard about our year (yeah, right), we do have one thing to legitimately brag about. We have a son; His name is Anderson Charles Vaules, and he is alive.

I won’t kid myself by thinking that no one knows what happened this year. If you are receiving this letter, I can assume you have heard most of the story of Andy’s arrival, so I won’t go ad infinitum into past details. Here is the skinny on the chubby kid as of now. After being released from the NICU, he had two additional hospital stays. One was for hernia surgery on November 5th, which we ended up getting the hemangioma (a big, mean birthmark) removed from his hip as a “bonus”. When we were there, and while Andy was still “under”, the ophthalmologist came to do a regular eye exam to follow-up on Andy’s ROP (Retinopathy of Prematurity) laser surgeries done before he left the NICU. It was good they could do the exam while he was “sleeping”, because they are akin to something from A Clockwork Orange (Stanley Kubrick, Warner Brothers, 1971). (Someone let me know how obscure I get in my references, please.)

While I really didn’t need to paint that picture for you, Renae and I have had to stand by during his weekly post-surgical visits while he is having it done while he is awake. Some post NICU things are really more difficult than what we experienced in the NICU, and a screaming child with clips holding his eyelids open has topped the list so far. What the doctor saw during the hospital exam was not good. Both of Andy’s eyes progressed into more severe levels of ROP, with his left eye being worse than his right. Since we were already there, I suggested we try and get the eye surgeries done while he was still admitted. Sure enough two days later, Renae and I found ourselves warming the seats in the surgical waiting room again. If you are keeping count, Andy has had 7 separate surgeries on 4 occasions.

So, we take Andy home after 4 nights and continue with all of the things we have been told to do (oxygen, medications, monitoring), hoping things start getting better. About 10 days after our second stay, our third hospital stay begins. The incision from his hemangioma surgery opened, and proceeded to “self-drain” (okay, ooze) and we were quickly back at the same hospital we were at for the original surgery for another 2 days. After some IV antibiotics, and a surgeon opening up the incision, we are sent home again. There was a chance of another eye surgery, but more on that in a minute. Total hospital days to date: 112.

http://andy.vaules.com

Andy has a website, and contrary to popular belief I have not abandoned it lately. I have a child to care for and I have been having a hard time putting in the hours. I have been trying to get the format as such so I can update it without having to go back and update ten other pages as well. Don’t get me wrong, the website is a great way of letting people know what was going on, but God forbid I skip a day and the e-mails flood in. There are people who know about what happened that we haven’t even met, and there are many friends of a friend who have written to us we hadn’t heard from in a while. I should have fixed the website from the format change by now, and you can get caught up on Andy’s happenings more often.

So, We Are Parents. Big Deal.

When it comes right down to it, the end result of what we have gone through is that we are parents of a tough little kid. We are going through what every set of parents deals with in terms of a newborn. Yes, we have added challenges with Andy, but I do have to say, with each day, he is more and more “just a baby.” As of now, Andy is off oxygen, off the monitor, and off all of his medications. He really is, now, just a baby. I might regret mentioning our new nickname for Andy in the future, especially if it is used against him. We call him “cheeks” for the two whopping food storage areas on either side of his mouth, not because of his butt (or lack thereof – there is one thing he inherited from me). He is progressing well, and the follow-up appointment with the Neonatologist went very well. The Occupational Therapist was very impressed with his strength and movements, commenting he was ahead of schedule.

We still have to worry about the long term effects of the brain bleeds and all of the many things that could cause in the years to come. Yet, for now, we are worried about his eyes. He might need more surgery on his right eye, but the surgeon does think it is his strongest eye, and after his last exam he stated the eyes were stable. The retinas are both somewhat detached in each eye, so we will have to wait (a long time) before we really know how this will play out. The surgeon believes Andy has a 50% chance of “perfect” or “20/20” vision in the right eye, and 30% chance in his left. At the same time he warned us we are not out of the woods yet, with blindness being possible, and anymore surgery in the left eye would be very risky (more than eye surgery is to begin with?). We thank everyone for the prayers said for our family this year, but if you have the time please pray for his sight.

One last thing about Andy; He has been named Ambassador Child for the Twin Cities division of the March of Dimes. This means Renae, Andy and I will represent the March of Dimes at particular events, and speak to the need for more research into preventing prematurity, birth defects and other illnesses in babies. Remember not only was Andy a preemie, but he had a birth defect (the Artesia or collapse of his colon), and the post birth complications are reason enough to support their work. I have been a volunteer with the MODs for the past couple of years, and the irony over my involvement and Andy’s arrival is thick. I was recently named to the board of the Twin Cities division. Andy will be highlighted in the annual report for the National March of Dimes in April, and they are starting a campaign to cut the number of premature births by 15%. This spring, I hope to arrange a team for the March of Dimes Walk America in Minneapolis. If anyone is interested in joining “Team Andy”, please let me know.

There are other people in your family, right?

Up until the point Andy arrived, we had been having an uneventful, unemployed year. We were both searching for work, and picking up contract work along the way. Really, I don’t remember much before Andy arrived. I do remember going to a number of Renae’s prenatal visits and learned one thing: There is no “good” place for a guy to sit in an OB exam room. Other than that, 2002 is a blur for me.

Renae is feeling well now – considering Andy arrived early because Renae was very ill, we end up the year with all in good health. She is working at a medical device marketing company as the Director of HR. It is currently a contract position (no benefits), but we hope it will go permanent at the beginning of the year when sales begin to pick-up.

Our dog rocks. Walt (Walter Elias Vaules, an American Eskimo to be exact) has done very well with all of the commotion around him. At times, he has even clicked into “Lassie” mode to notify us of Andy’s crying, and insistently leading us to Andy so we can deal with him. (What Lassie? Timmy is in a well?). You will never convince either Renae or me that he is “just a dog”, he is family. We make sure he gets some “Walt” time, and he still sleeps between us most nights.

I am a “stay-at-home dad”, although it would be nice to work fulltime – outside the house. Andy keeps me pretty busy, and daycare is not an option at this point. I have been trying more and more to build a marketing consulting business on the side, and am also starting to see what writing has in store for me in the future. I think Renae believes I am having an affair with Microsoft Word. I have been seeing it sometimes more than her. She has been very forgiving (Renae, that is) and I have started off on a few writing projects and will try and get some things published in the not so distant future. I look forward to the rejection letters. I think I might correct and return the first few I get, just for fun.

And So We End…

This year has been full of tears of joy, and tears of pain, but no tears were wasted. I can’t say this year has not been without its firsts, but I can hope that its accounts for a lot of “lasts”. Being a father, now, all I can say is these letters are going to get much better. Did I tell you why the person that invented the “Diaper Genie” should be elevated to sainthood? Okay, that can wait.

We would like to thank everyone who has been so kind to us with your cards, letters, e-mails and such; it has been an overwhelming show of love and support. I promised myself I’d keep this down to two pages, so much for that. Another reason this letter is late is because of the family portrait. I’d hoped we would have it before the letter goes out, but the studio date is 12/23, so we will save the picture for another time. We hope life finds you well, and it still wouldn’t kill you to write back. We still have e-mail, you know…

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Blogging, it’s Fundamental

by Robb Vaules on December 21, 2002

Yes, I blog.

The Christmas letter is finally finished and going out today(!)

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Fear of the Diaper Genie

by Robb Vaules on October 27, 2002

Can’t say as there is anything entirely new. Grandma Vaules is cold. We are trying out a new humidifier, and find everyone in the house is more comfortable. Andy has jumped up to larger feedings in the last couple of days, and is keeping most of it down. Really, the only time he doesn’t is when we push him up a little. He lets us know he doesn’t like it by barfing on us.

Renae is scared of the Diaper Genie for some reason, or thinks the will throw themselves away. I always find dirty diapers *I* have to throw away for her. It isn’t a garbage disposal; you won’t lose a hand or anything in there.

As you can see, I have started to change the website. I am trying to make it easier for me to add onto. I have archived the old website, and will slowly put up everything on to the new one.

For those family members who are wondering, I have started the Christmas letter.

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Hernias Blow

by Robb Vaules on October 24, 2002

First, we visited the Pediatrician on 10/23, and he found a hernia, or as he put it “an easily reducible hernia, but that could change.” We will need to have surgery at some time, when we do not know. I called Andy’s surgeon today, and he will consult with the pediatrician. More on that as it unfolds. We do have an eye appointment soon, and if they need to do anything with his eyes, they might want to double up while he is under.

The speech at the March of Dimes benefit went well. I guess, I don’t remember much of it. While I have spoken in front of groups before, there were many things I was bringing up that started to choke me up. I normally would practice something like this, but I read it of my notes. I made it through. We had attended the same function last year, and it upset me when people didn’t stop to listen to those speakers. Well, about 30 seconds into my speech, the room was silent. It freaked me out a bit, a few hundred people we staring at me, and I had to make a point.

Kaija, my friend and “boss” for my volunteer work at the MOD had made up lace bags of popcorn kernels for each table. Each of these bags weighed 1 pound, 4 ounces – Andy’s birth weight. They had a card on it that highlighted, not specifically with Andy’s name, what the uncertainty was like for us. I made a point of showing the bag, and the frog beanie baby, to illustrate how big Andy was a birth. I forgot to say he was 6 pounds that day. Oh well. I was fine, mostly, throughout the speech, until I caught Renae out of the corner of my eye. She was crying.

Well Grandma Ginny shows up today. I would suspect that I won’t have a chance to hold Andy for a couple of days. I hope I can be productive during that time. I have also sent Renae an e-mail (she has to do this herself, and need instructions) allowing her to post to the Blog. We will see how long it takes for her to join in. Off to feed.

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An ounce at a time

by Robb Vaules on October 22, 2002

Wow! I was hoping for a little more weight gain today. The home healthcare nurse visited today, and weighed Andy just 2.5 ounces heavier than last week. Depending on whom you listen to (and there are plenty of opinions) an average weight gain should be between .5 and 1.5 ounces a day. He has not been eating as much as he was in the hospital, but that being said he was under a lot more stress in the hospital than he is at home.

Andy has a little phlegm sounds during and right after he eats. No one seems to be worried (of course, us), but his chest is clear and the sounds are attributed to eating and the dryness of the environment. We have purchased a cool mist humidifier, and will suction his nose on a schedule. Actually, everything is on a schedule, and I have a worksheet made up to track everything in a day. Too much? Nope, with the two of us (and my Mom helping when she arrives) we need to keep track of what is done when, especially medications. With the weight gain being low, I want to keep a closer eye on how much he is eating. He needs to start eating more, not less. Food is his best medicine.

Some of you might know that I have been a volunteer for the Minnesota March of Dimes for a couple of years. This situation is hugely ironic to my involvement to the March of Dimes. Well, the involvement gets a little bigger tonight, as I will be speaking at a fundraising event for the MOD. Andy has been chosen to be a 2003 “Ambassador Child”, to highlight the need for more research into preterm labor and birth defects. I really need to finish my speech, and I don’t know what I am going to wear. I have been in nothing but jeans for the last four months.

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Blogs take time

by Robb Vaules on October 21, 2002

Yes, we are alive…

Okay, Andy is crying and my Mother sent me an e-mail chastising me for not updating the blog to let everyone know that everything is fine. Since I am staying home with Andy, I don’t have much time to do everything I need to do, as well as the contract work I need to get done for some clients. So, I will stop writing and take care of the kid….

Okay, I am back now. Andy is doing well, and although he has slowed down in his feedings. We went to the pediatrician on Wednesday for his initial visit, and he got two follow up vaccines. We will return this Wednesday to get the next two, and follow up on his weight. We also have a home healthcare nurse who will visit us for the next few weeks, and then every month through RSV season for his shot. During our first visit, I found out that the $1000 per month RSV shot is actually a $2795 per month shot. It is 100% covered by insurance (including the home visit), as the insurance company believes the shots are cheaper than a hospitalization.

We have a few follow up visits, as well as the Peds appointments, and will be keeping track of his development and how the different health issues will affect him for at least 2 to 5 years. There is not easy answer to this situation, Andy has his challenges, but most of all we are thankful he is home.

Renae’s parents visited for this past weekend. It had been early August since their last visit, and were amazed on how Andy has grown. My Mom will arrive here on Thursday and stay for 12 days. She took an infant CPR course so she can baby-sit Andy, and give us a break away from the house. She also mentioned she wants to visit in January, which is amazing someone from Arizona would want to come to Minnesota in the dead of winter. I know she isn’t coming to visit me, that’s for sure.

We are playing catch up in a lot of things right now. Pretty much anyone who has had a child has given up plenty of breathing room. Not saying those who don’t have been pushy, but there is this clam smirk I get from other parents who think we are going to get done everything we have on our lists.

One of those things on our list is the promised updates to his website. I will be moving on that soon, as part of what I am doing to his website is a test for a client’s website. I realize the majority of the stress is over, and the need to come back daily will not exist, but we appreciate the thousands of visits by the hundreds of people who have learned of our situation, and will not fail in updating you on our situation.

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Sisu 10, we are all home

by Robb Vaules on October 13, 2002

Face it, we had an idea we would be coming home on Sunday, but this Past Wednesday it was supposed to be Saturday. So we had promised to wait until we actually go home to call this part of the journey, over. Too many things to do to get into detail, but I will update soon.

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Walls of green

by Robb Vaules on October 12, 2002

I will never paint again, I will never paint again, I will never paint again. I really am a bad painter, at least I have hope, but when I was taking down the masking tape from the ceiling, I took some of the paint off the walls. Looks like we are going to put up a wallpaper border. I still have paint on the bottoms of my feet.

We had a nice dinner with another set of parents tonight. They were in our nursery, and moved next door to us in the boarding rooms. They might go home this week.

Andy still loves chocolate. Eating well, and is up to 5 pounds, 11 ounces today. He passed his “CR” breathing study, and we are trying him out on his home monitor to see if it works, and just in case we have any questions on it for Monday. We had to drag the results of Andy’s steroid stimulation test out of a resident today. They were “okay”, and he won’t need any additional steroids (at least not from here), and will be assessed again, along with his breathing, soon. He has really been eating a lot, and filling diapers well. We started using the 8-14 pound size on Andy, just to avoid his blowouts. We still “lost” a sleeper tonight. Sorry “Grandma” Betty. It will wash. We are starting to become concerned that we won’t be able to put Andy in all of his preemie sized clothes. They tend to shrink, and he is not getting any smaller.

I hope they let us sleep a little longer tonight, as Andy has been sleeping for up to 4 hours between feedings, but we were woken up early so they could get a feeding in before shift change. We were all happy and sleeping. I will be glad when we get home. No real exit planned yet. We have to get the go ahead from the doctor, and there are replacement Neos this weekend. In all fairness, this is the guy who runs the NICU follow-up clinic. We hope the will shine on us soon.

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My son is a chocoholic

by Robb Vaules on October 11, 2002

We are in education mode, and since we are going home on oxygen, we had our classes on the tanks and monitor today. They even gave use a little backpack for the small tanks. He does not need to be on the monitor all the time, just for spot checks, but my Mom has pretty much requested that he stays on the monitor.

Also, while Andy like the French Vanilla flavoring, I found out during dietary training that we can only get the French Vanilla flavor packets in an assorted box. We can get the chocolate alone, so I tried one this morning. He loved it. He sucked down the bottle, and another, and another, and another. He is already at his 12 hour goal feedings 7 hours in. My son is a chocoholic.

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Exit planning

by Robb Vaules on October 10, 2002

I am being very non-committal to any exit date, as they are being to me. The adrenal stimulation test they did yesterday was screwed up by the lab, so they have to do it again (2 blood draws and a shot).

We do know, finally, that we are going home on oxygen. We have a training class tomorrow. I have now come to find out that the nurse situation also involved a screw up by the pharmacy, not that the nurse is off the hook right now. Renae picked up a swing and bassinet lent to us by two friends. I went upstairs with a lactation consultant to assess the breast milk situation. There are about 200 containers we will have to take home and add to the 400+ that fill the freezer. We will do out best to use it all up to prevent waste. I will need to get a cooler from the house.

Uncle Rich never called back at the hospital. Bad Uncle Rich. (See if I can get his mother in law, or mother to guilt him…) Aunt Sara can be found modeling for a page on the e-trade website. Under mortgages, she is standing next to a construction worker. I am still waiting for her Asthma commercial. I ramble.

One of the families we are friends with moved into the boarding room next door to us. They are on their way out soon, too. I figure it this way, we are home when we are home and not a moment sooner. A wise old friend once told me, run through the tape.

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